Supporting Research for Smith-Magenis Syndrome

A complex developmental disorder such as Smith-Magenis Syndrome (SMS) makes life very difficult. Those affected by it have to battle with various conditions such as developmental delay, oral-motor dysfunction, aggression, sudden mood changes, and self-injury. These can also impact the lives of the people around them.

We know how hard it is to live with SMS, and this is why Grinning with Gavin wants to step in. Our team supports the research efforts in the United States that seek to improve the condition of individuals with SMS.

Mission Statement

Our mission is to increase support, awareness, and funding for research to develop therapeutic solutions that will improve individuals living with Smith-Magenis Syndrome (SMS).

Finding Our Purpose

Through this extremely challenging and humbling journey, we noticed how the little things could have a huge and beautiful impact. This path has given us a purpose to help people living with SMS.

Who We Are

Finding out that our son Gavin has SMS, our lives have changed. However, he was and is still Gavin. Despite the challenges he has and will continue to face, he still has that beautiful grin, contagious laugh, and empathy for others. We researched more about this condition, and then we found the SMS Research Foundation (SMSRF). We researched more about this condition, and this is when we came across the SMS Research Foundation (SMSRF).

Through this foundation, parents of individuals with SMS raised both awareness and money for research for a better quality of life. This was what inspired us to start Grinning with Gavin—to continually support the works of SMSRF.